The Association for Dementia Studies works across a broad spectrum of areas to ensure that all people living with dementia are able to live well. Supporting people to live well requires us all to recognise individual needs based on life history, identity and experiences.
Our portfolio of work includes or has included research on and education about on Women and Dementia, Black, Asian and Minority Ethnic (BAME) communities, LGBT and cultural competence.
The Association for Dementia Studies was awarded funding by the DH Workforce Advisory Group to develop resources for use to increase cultural competence in in the domiciliary care workforce. The result is an education package that can be used by anyone with responsibility for education and quality in organisations that provide care for people living with dementia in their own homes.
ADS education courses
ADS delivers cultural competency training as part of all of our courses. The intended learning outcomes are for participants to:
- Understand the needs and experiences of people from minority ethnic communities in relation to dementia and caring for a person with dementia;
- Consider how their organisation and personal practice meets the needs of such people;
- Identify and discuss some of the ways in which their organisation and personal practice can offer culturally competent care via a person-centred approach.
To find out more about our education courses please see our Dementia Education and Development pages.
At Home with Dementia
ADS was commissioned by the Royal Surgical Aids Society to investigate new and innovative ways of improving the quality of life for people living with dementia and their families at home. The charity wished to achieve this through the design and delivery of a project or service model which could provide support to carers and families of people living with dementia at home to ensure that they can maintain their independence and dignity, and remain in their own homes and within their community for as long as possible. Recognising the importance of person-centred care, the charity sought to ensure that the developed service was culturally inclusive.
The Alzheimer’s Society was awarded funding from the Department of Health for an innovative three-year pilot project to engage volunteers from BAME communities to design and deliver awareness raising activities appropriate for diverse communities across eight London boroughs. ADS was commissioned to evaluate the impact of the project, and more information can be found here.
In 2015, Alzheimer's Disease International (ADI), commissioned the Association for Dementia Studies to write a report about the evidence base relating to women’s experiences of dementia. The report Women and Dementia: A global research review provides an overview of research from all over the world, highlighting the need for a broader, evidence based approach to female-targeted dementia health programmes in low and middle income countries, where female-led family caring remains the predominant care model. Read a short blog piece about the report.
Dr Karan Jutlla contributed to a Joseph Rowntree Foundation project exploring women's experiences of dementia, which provided a platform to highlight some of the issues faced by South Asian women caring for a family member with dementia, particularly daughters-in-law who quite often remain hidden from services. Read Karan's blog about this.
Seminars and Knowledge Transfer
ESRC Seminar Series: Age, Race and Ethnicity
ADS partnered with Brunel University and Swansea University to deliver six seminars focusing on issues concerned with age, race and ethnicity. The objective of this seminar series was to develop, explore, theorise and codify our knowledge and understandings of the experiences of later life amongst minority communities in the UK. They brought together academics from a range of disciplines, policy makers, health and social care practitioners, commissioners of services, and those working in the voluntary and statutory sectors to share their perspectives, the theoretical and methodological approaches they have been developing, and their empirical findings and policy/practice implications of their research. For more information visit the ESRC Seminar Series page.