Teaching, Research and Knowledge Transfer
Between October 2013 and June 2016 Chris Russell led a research project exploring the experiences of people with dementia teaching as Tutors at University, the Expert by Lived Experience Tutor Initiative. This provided new insight into aspects of the lived experience of dementia, including diagnosis, citizenship and personhood. The initiative also enabled a greater understanding of how teaching that relates to the lived experience of dementia could be improved and given greater integrity. More detail can be found within articles published on the initiative (please see Publications & Dissemination section).
Chris is currently working towards a PhD: Russell, C., (2016-2019), To what extent does engagement with the activities of community-based leisure and fitness centres enable people living with dementia to maintain and develop their sense of identity? A phenomenological study. University of Worcester. Chris is supervised by Professor Dawn Brooker, Dr Geoff Kohe, and Dr Shirley Evans.
Chris has also contributed to teaching and training for the Association for Dementia Studies (University of Worcester), in their commissioned courses across England. He is a member of the project team for Meeting Centres Support Programme, led by Professor Dawn Brooker at the Association for Dementia Studies.
The LINK Group:
Between October 2013 and October 2016 Chris Russell facilitated the LINK Group. The LINK Group comprised of people living with dementia, and carers for people with dementia, as part of the Association for Dementia Studies, at the University of Worcester. Group members contributed through sharing their experiences of living with dementia with those enrolled on teaching and training programmes at the University of Worcester, and across the United Kingdom. They established a national and international reputation for their educational work and was affiliated to the Dementia Engagement and Empowerment Project (DEEP).
Chris was project leader for the LINK Film Project. The project created a set of short films, tailored to the needs of the education and training provided by the Association for Dementia Studies and the wider University. The films will draw upon the authentic voices of people affected by dementia, i.e. directly from the accounts of members of the LINK Group.
Publications and Dissemination
Peer Reviewed Journals
Russell, C. (2016) People with dementia, contributing to learning and teaching in higher education: Innovative practice Dementia: The international journal of social research and practice 0(0) 1–6 DOI: 10.1177/1471301216685460
Russell, C. & Xu, Q. (2015) Lived Experience at the Centre of Learning. The Australian Journal of Dementia Care 4 (5), 18-19
Russell, C. & Xu, Q. (2015) Lived Experience at the Centre of Learning. The Journal of Dementia Care 23 (4), 18-19
Mackian, S. Russell. C, & McCalla, L. (2013) “Preparing to Lead” In Mackian, S. & Simons, J. Leading, Managing, Caring: Understanding leadership and management in health and social care. Open University, 1-27.
Invited Conference Presentations
Russell, C. (November, 2016) Sport, Identity and Dementia. Mental Health Issues, Cradle to Grave. Worcestershire Health & Care Trust and the University of Worcester, University of Worcester.
Russell, C. (July, 2012) What the Care Act Will Mean for Social Work? The Future of Social Work Conference. University of Gloucestershire.
Refereed conference presentations
Russell, C. (July, 2017) Enacting leisure in the context of dementia and identity: the role and significance of community leisure centres. Leisure Studies Association Annual Conference, Leeds Becket University, Leeds.
Russell, C. (June, 2017) The community leisure centre as a resource for people with dementia: explorations of individual and social identity. Poster presentation. Postgraduate Research Student Conference, University of Worcester, Worcester.
Russell, C. (June, 2017) Challenging Myths and Stereotypes – man with dementia helps me understand how to pole- vault. Images of Research Competition, University of Worcester.
Russell, C. (November, 2016) “Experts by Experience Tutors” – people with dementia contributing as tutors on a University course in the UK. Excellence in Dementia Research and Care. 26th Alzheimer Europe Conference, Copenhagen, Denmark.
The Link Group. (November, 2015) People with Dementia and Carers Contributing to Teaching. Learning from Each Other. 10th United Kingdom Dementia Congress. Telford, United Kingdom.
Russell, C. (October, 2014) People with Dementia Contributing to Teaching and Learning at Higher Education level. Dignity and Autonomy in Dementia. 24th Alzheimer Europe Conference, Glasgow.
Russell, C. (October, 2013) Improving Practice in Dementia - involving the people who matter most. People, Policy and Practice. Research in Focus Conference, the University of Worcester