Researchers from the University of Worcester discuss the impact of living with long term physical and mental health conditions
This webinar brings together researchers from the Interpersonal Relationships & Wellbeing Research Group and Bipolar Disorder Research Network (BDRN) at the University of Worcester, to discuss research which seeks to understand the impact of living with long term physical and mental health conditions. We present four short talks exploring the experience of individuals who have lived with inflammatory bowel disease, breast cancer and bipolar disorder. Listening to personal stories allows us to better understand the complexities of living with enduring health difficulties.
Dr Bérénice Mahoney: Living with breast reconstruction failure among women with breast cancer
Dr Mahoney will present findings from her research with NHS colleagues from across England that has explored the experiences of women with breast cancer whose immediate breast reconstruction following mastectomy has failed. This surgery is the most common type of reconstruction conducted in the country but has a 1 in 10 failure rate. The webinar will focus on women's accounts of their experiences from diagnosis to reconstruction failure and recovery, and how we can use the perspectives of these women to improve the care they receive.
Dr Kate Muse: A feeling of otherness: Understanding the experience of stigma in Inflammatory Bowel Disease
Dr Muse works in collaboration with Dr Annabel David from Children’s Psychological Medicine at Oxford University Hospitals NHS Foundation Trust. Their work examines the adverse impacts of health-related stigma in people with gastrointestinal disorders. This talk will present findings from a narrative review of literature exploring the experience of stigma in individuals with inflammatory bowel disease (IBD). Drawing on a broad range of first-hand accounts, the talk seeks to understand what it is like to experience direct or anticipated social judgements based on having a diagnosis of IBD.
Dr Katherine Gordon-Smith: “Have I argued with my family this week?”: What questions do those with lived experience choose to monitor their bipolar disorder?
Dr Gordon-Smith is a member of the Bipolar Disorder Research Network (BDRN), a group of researchers, clinicians and research participants in the UK involved in investigating the underlying causes of bipolar disorder. BDRN has recruited over 7000 participants to the research programme to date. Over 1000 BDRN participants are also engaged with True Colours an electronic mood monitoring tool which, in addition to monitoring mood symptoms, offers participants the option to create and complete additional personalised questions. This has offered a unique opportunity to capture and gain a deeper insight into patient priorities in this context. This talk will focus on the main themes that have emerged from analysis of the content of the personalised questions those with lived experience of bipolar disorder choose to monitor in relation to their bipolar disorder.
Emma Radclyffe: Exploring the experiences of individuals with bipolar disorder diagnosed with borderline personality disorder