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The support and education needs of people with dementia and family carers

Coventry University Faculty of Health and Life Sciences in collaboration with ADS were commissioned by NHS Coventry to explore the support and education needs of people with dementia and their carers within the Coventry and Warwickshire area. The identification, development and provision of appropriate, accessible and current information (and education) and support networks/structures will lead to empowering individuals to make effective and informed care and support choices along the spectrum of the dementia care pathway.

The intention was to identify the information and communication needs of people with dementia and their carers, then co-create innovative materials that are accessible, appropriate and relevant to the needs of these people, taking account of ethnic diversity. ADS contributed to this study by carrying out a scoping of the literature concerning interventions for people living with dementia and their family members/supporters in a care-giving role.

ADS also worked collaboratively with people living with dementia, family members and supporters to develop a personal information record.

This project was completed in December 2010.